The Heart Babies Collection February 8, 2010

If any of you read my last post you know that I recieved an e-mail that was by far the best e-mail I have ever recieved. Amy who us the proud owner and CEO of flowerzinherhair.com is doing the unthinkable for our family. She is donating 100% profits from the orders she recieved from the new Heart Babies Collection to help with Alyssa’s medical expenses. I don’t know how to ever really thank Amy and her family for this gracious gift. Our family is in awe and greatly appreciates everything they are doing. Her family is now apart of our family and we will always hold a special place in our hearts for them. I have to take a moment to thank my friend Courtney for introducing me to Amy through Twitter and her beautiful website. After I got to bring Alyssa home I desperately wanted to put a pretty little bow in her beautiful hair. However, all of the bows and headbands were just way to big for her. Amy came to my rescue. She had preemie headbands with interchangeable bows and flowers. I fell in love with everything on her site and it gives me such joy to see Alyssa in Amy’s beautiful hair accessories. And with the wonderful prices of the bows/flowers I now have quite the collection. I later found out that Amy was also a heart mom. She offered her support and told me she was there for me and was willing to share her story. Amy is by far one of the most amazing people that I have ever met. I would greatly appreciate everyone taking the time to look at Amy’s website. You can read about Alyssa and Amy’s heart child Chandler and see all of the beautiful work she does.

Flowerzinherhair.com

Blue… February 3, 2010

So today we went in to the cardiologists office because we wanted Alyssa’s pulse ox to be looked at. Last week Alyssa turned blue during a spongebath… Her hand went completely blue. Her fingernails have been blue and just a few days ago her toes began to turn blue. So being the paranoid heart mom I needed to make sure her pulse ox was good. After her spongebath incident we had taken Alyssa up the street to her peditrician to check her level but when he did it he got a 75! He was using one for a bigger child so we felt that was the reason it was so low, it couldn’t be right. At her cardiologists today we got a read out of 96. A sigh of relief. However he did tell us that the ventricle is beginning to get tighter/smaller and starting to close. Which is the reason why we are seeing her fingernails and toes turn blue. We just have to watch her closely and any signs of a tet spell we will need to call 911. I know it’s somewhat “normal” for her to look a little blue, but it’s still frightening and not something you want to see your child go thru. Especially knowing that she is blue due to lack of oxygen.

On a lighter note….
This morning I woke up and did my normal routine….grabbed my iPhone, checked my missed calls and texts, then opened my e-mail. It was once I opened my e-mail that my mouth hit the ground. Not to mention the tears which could have filled up a koi pond. Let’s just say that I have met an unremarkable woman thru my best friend Courtney all over the Internet. I was already in love with her and her family and today I believe that her and her family has to be a group of the most amazing people in the world. I can never truly express my gratitude or appreciation for what they are doing for our family. I am not going to tell you what the e-mail said… However when the time comes I can’t wait to share the outcome. Today I am very humble and feel extreamly blessed.

P.S. If you know a woman in Utah named Amy…reach out and give her a huge hug for me! It very well could be the very same Amy who has a heart made of gold and may just be the sweetest person I have ever met.