So today we went in to the cardiologists office because we wanted Alyssa’s pulse ox to be looked at. Last week Alyssa turned blue during a spongebath… Her hand went completely blue. Her fingernails have been blue and just a few days ago her toes began to turn blue. So being the paranoid heart mom I needed to make sure her pulse ox was good. After her spongebath incident we had taken Alyssa up the street to her peditrician to check her level but when he did it he got a 75! He was using one for a bigger child so we felt that was the reason it was so low, it couldn’t be right. At her cardiologists today we got a read out of 96. A sigh of relief. However he did tell us that the ventricle is beginning to get tighter/smaller and starting to close. Which is the reason why we are seeing her fingernails and toes turn blue. We just have to watch her closely and any signs of a tet spell we will need to call 911. I know it’s somewhat “normal” for her to look a little blue, but it’s still frightening and not something you want to see your child go thru. Especially knowing that she is blue due to lack of oxygen.
On a lighter note….
This morning I woke up and did my normal routine….grabbed my iPhone, checked my missed calls and texts, then opened my e-mail. It was once I opened my e-mail that my mouth hit the ground. Not to mention the tears which could have filled up a koi pond. Let’s just say that I have met an unremarkable woman thru my best friend Courtney all over the Internet. I was already in love with her and her family and today I believe that her and her family has to be a group of the most amazing people in the world. I can never truly express my gratitude or appreciation for what they are doing for our family. I am not going to tell you what the e-mail said… However when the time comes I can’t wait to share the outcome. Today I am very humble and feel extreamly blessed.
P.S. If you know a woman in Utah named Amy…reach out and give her a huge hug for me! It very well could be the very same Amy who has a heart made of gold and may just be the sweetest person I have ever met.
I’m so glad her pulse ox is up. I know what a crazy stressful time this can be!
And Thank you! I’m really not that good, my heart is cold hearted gold